Journal - April 27, 2009 (Monday) Day +288by Sheri Nocelli on 06/14/13
Well I went to the doctor this morning, and looks like everything is looking good! Of course, if there is anything wrong with the blood results he said he would call me later, so I hope the phone doesn't ring. I showed him a little mole that is starting to grow, because I had never noticed it before. He said he'd like me to see a dermatologist, and that since I had Leukemia I should plan one seeing on once a year from now on. (I like that he's thinking ahead, it feels promising!). So the appointment was mostly uneventful, the way it should be. He did get a little upset that I was in the sun this weekend and said he has to tell me firmly no sun... I guess that was wrong of me. I just miss the sun so much! But I need to start listening... He also said that in July when we reach the one year of my Bone Marrow Transplant date, then we will have to start all of my immunizations (which were all wiped out with the transplant, that's why I have the immunity of an infant). I literally have to get every immunization again; diphtheria, tetanus, Haemophilus influenza type B, Streptococcus pneumoniae, Poliovirus and influenza (annually).
I got home and was SO exhausted; I really needed to go back to bed. Lucien was moving a plant on the back porch and I went to tell him I was home. Wouldn't you know, I closed the door behind myself and yeah, we were totally locked out! Luciana was in the living room watching TV and we were locked outside with no key. So Lucien tried to get the door open (with no success), and I walked over to the church, the ladies in the parish center were kind enough to let me call Lucien’s parents (they have a key) but they couldn't help because they live an hour away. So they called the locksmith to the tune of $90 later to get back into the house. Lesson learned. That was a very expensive lesson straight out of the grocery money! Smooth move on my part.
Anyway, the weekend was amazing. We did something we've never done in more than 7 years; we took a personal day on Friday. We spent the whole day in New York City, which was fun because I've personally never done the touristy NY thing, we're always performing or working and there's no time. We had lunch, then went to some of the shops. We hit up the Hershey shop, and the M&M superstore. We are huge M&M fanatics, so we loved, loved, loved that. We got the kids some little matchbox cars named after different chocolates it was pretty cute. We went to Colony music store which had the most amazing selection of sheet music, Lucien took forever, he was like a kid in a toy store. We went to the American Girl store since we were there, to pick up Luciana’s birthday present that everyone is chipping in on. She's getting the Bitty baby twin, so cute it looks just like her!! The store was amazing, I felt like a little girl in there... so amazing. We walked in Times Square, and just took everything in.
The night ended with seeing Chick Corea and the Five Peace Band in the Rose Theater at Lincoln center. We had great box seats (since I can't sit too close to anyone due to germs and my low immune system still). The show was absolutely amazing, Chick was great as usual, and I loved the drummer’s style, it was great. After the show, we went backstage and talked with Chick for a few minutes, and had our picture taken with him. It was amazing to finally meet him, his music has been so comforting to me through this past year, and Lucien has been studying his music for close to 30 years, he was and is Lucien's inspiration when it comes to his jazz fusion. It was an amazing night, and just what I needed to get out and live life.
Over the weekend we spent a lot of time with the kids outside (in the sun, which is what the doctor was upset about). The Lincroft Little League had a parade down our street which the kids loved to see right in front of our house! Then we filled the kiddie pool so they could cool down in the heat. I can't believe it's not even summer yet!