Journal - May 18, 2009 (Monday) Day +309
by Sheri Nocelli on 06/14/13
Another few weeks
went by all full of complete craziness... seriously it's been a wild few weeks.
So I'll start with the medical update. I didn't go to the doctor last week, I
missed my appointment. So I went this morning. It had been three weeks since I
was there which wasn't too good, I know. We did blood work today, which I
haven't heard anything back yet which is usually good news. He reminded me
again that in July I have to start getting my immunizations all over again
(this is not something I'm looking forward to!) so I said, "Well, that's
not until July so let's not think about that yet!" I told him about a
light rash I had in between visits, it was on my arms and chest, and was a lot
of little tiny bumps, I couldn't see them and they didn't itch so the general
opinion is that it was a little heat rash. The good news is that we lowered my
Prograf again, now I'll take .5 mg every other day. This means I might be off
the Prograf in a few weeks!! Exciting stuff. I go back to the doctor in two
weeks now. Hopefully I will handle the lower med dose just fine.
What a crazy few weeks. For starters, the
pictures we took yesterday on Sunday. Once a year I make sure we get family
portraits taken and we also got Luciana's birthday pictures done in her
princess birthday dress! I'm so thrilled with the pics!
Mother’s day was amazing... I woke up in
my own bed, in my own house, to my beautiful children... Adrian handed me a
little gift bag. I opened it to find a necklace, called the Journey necklace
(I'm wearing it in the pictures). Along with it Lucien had helped him write a
note "Dear Mommy, This necklace is called Life's Journey. Every time you
wear it remember the Journey you've been on, and the Journey ahead and that we
need you to help us on our Journey. Love Adrian Luciana and Daddy" .. It
was SO sweet. The note Adrian wrote, made me love it and appreciate the meaning
so much.
That's how the week started... then it
all tumbled down when our central air stopped working. We had to wait a week
for it to even be looked at! So luckily we have a wonderful handy man (if you
need his number let me know!) who was kind enough to come over to put up
ceiling fans in the kids bedrooms until the air was fixed. So they came to fix
the air...... and the total price came to just under $1000. Yikes. So we did
what we could, we fixed part of it but left the rest to be fixed when we can
pull it off. So right now we're lucky it's not scorching outside yet, but at
least the kids have ceiling fans in the meantime!
Other than that, I don't want to harp on
the negatives; I'd rather share the positives. I decided that for my birthday I
wanted to do something for me. Years ago I was a fairly talented artist, mostly
with pencil and watercolors. So I decided I wanted to get back into it, I felt
I needed something to express my creative side a little and as a relaxing
activity. I've finished a few new pieces, and I think I'm slowly getting my
hand back into the groove of things. It's exciting and I'm so happy that I made
the plunge into studying art again!
So this coming Saturday is the fundraiser for the Smile Forever Foundation, who helps NJ families afflicted with Cancer, Autism and other disabling diseases. Please come out and support a good cause! This is open to kids of all ages, is a completely family friendly event. Lucien and I will be performing the opening act as well, so please come on out and enjoy a fun night of the Broadway show Beatlemania!!! Hope to see everyone there!!!!!!