Journal - May 18, 2009 (Monday) Day +309

by Sheri Nocelli on 06/14/13

Another few weeks went by all full of complete craziness... seriously it's been a wild few weeks. So I'll start with the medical update. I didn't go to the doctor last week, I missed my appointment. So I went this morning. It had been three weeks since I was there which wasn't too good, I know. We did blood work today, which I haven't heard anything back yet which is usually good news. He reminded me again that in July I have to start getting my immunizations all over again (this is not something I'm looking forward to!) so I said, "Well, that's not until July so let's not think about that yet!" I told him about a light rash I had in between visits, it was on my arms and chest, and was a lot of little tiny bumps, I couldn't see them and they didn't itch so the general opinion is that it was a little heat rash. The good news is that we lowered my Prograf again, now I'll take .5 mg every other day. This means I might be off the Prograf in a few weeks!! Exciting stuff. I go back to the doctor in two weeks now. Hopefully I will handle the lower med dose just fine.

    What a crazy few weeks. For starters, the pictures we took yesterday on Sunday. Once a year I make sure we get family portraits taken and we also got Luciana's birthday pictures done in her princess birthday dress! I'm so thrilled with the pics! 

      Mother’s day was amazing... I woke up in my own bed, in my own house, to my beautiful children... Adrian handed me a little gift bag. I opened it to find a necklace, called the Journey necklace (I'm wearing it in the pictures). Along with it Lucien had helped him write a note "Dear Mommy, This necklace is called Life's Journey. Every time you wear it remember the Journey you've been on, and the Journey ahead and that we need you to help us on our Journey. Love Adrian Luciana and Daddy" .. It was SO sweet. The note Adrian wrote, made me love it and appreciate the meaning so much.

       That's how the week started... then it all tumbled down when our central air stopped working. We had to wait a week for it to even be looked at! So luckily we have a wonderful handy man (if you need his number let me know!) who was kind enough to come over to put up ceiling fans in the kids bedrooms until the air was fixed. So they came to fix the air...... and the total price came to just under $1000. Yikes. So we did what we could, we fixed part of it but left the rest to be fixed when we can pull it off. So right now we're lucky it's not scorching outside yet, but at least the kids have ceiling fans in the meantime!

      Other than that, I don't want to harp on the negatives; I'd rather share the positives. I decided that for my birthday I wanted to do something for me. Years ago I was a fairly talented artist, mostly with pencil and watercolors. So I decided I wanted to get back into it, I felt I needed something to express my creative side a little and as a relaxing activity. I've finished a few new pieces, and I think I'm slowly getting my hand back into the groove of things. It's exciting and I'm so happy that I made the plunge into studying art again!

     So this coming Saturday is the fundraiser for the Smile Forever Foundation, who helps NJ families afflicted with Cancer, Autism and other disabling diseases. Please come out and support a good cause! This is open to kids of all ages, is a completely family friendly event. Lucien and I will be performing the opening act as well, so please come on out and enjoy a fun night of the Broadway show Beatlemania!!! Hope to see everyone there!!!!!!