March 10, 2010 (Wednesday)by Sheri Nocelli on 06/14/13
It's been so long since I've updated on here! I guess that's a good sign, because it means I'm so busy with work and the kids, that I forget to come on here sometimes.
Things have been a little up and down health wise so far this year. I have been having a lot of blood results coming back with pretty high liver function results. This is something of concern, because it could be graft vs. host disease which is common after a transplant. It is when the new cells fight my cells, and can cause damage. I've also been having painful issues with my eyes the past few weeks. It feels like I have sand in my eyes, and as the day goes on, the pain gets worse. My oncologist wanted to see me right away when I called about my eyes to ask him what to do. He thinks it is graft vs. host disease as well, and that my eyes have lost the ability to produce their own tears, resulting in very painful dry eyes. So I am on artificial tears eye drops right now which Lucien has to put in, because I am the biggest baby and my eye clamps shut when there's a bottle coming at it. It's pretty painful though, and I have an appointment with a cornea specialist that can determine what's going on with my eyes. We shall see from there.
So, this Friday, March 12th is such a big date. It's the 2 year mark of my official diagnosis of Leukemia, and the day I was swept away to go live at Guardian Medical Center. I cannot believe it's been two years of living my life with the fight; it went so fast. I'm so thankful to be with my children every day. They are so amazing and are my little guardian angels every day when I look into their little eyes, I see these two little people looking back at me, not baby's anymore. They are everything. I would do anything for them.
Life is back in the fast lane, and I couldn't be happier. Lucien and I often forget about my battle, because we're so wrapped up in the day to day routine... until we get a harsh reminder of what we lived through, like my bi weekly oncologist appointment, or every time we put eye drops in, or every time the phone rings and the caller ID says "Guardian Medical Center".. uh oh, whys the Doctor calling? And our hearts drop until we are calmed by a simple question on the other end of the line.
It's crazy the whirlwind we've lived through in two years, and where we are now ... and I'm so thankful that the biggest problem I had today was that I had too much work on my to do list... it's amazing that life is sometimes back to "normal". I wouldn't trade this life for the world.